Wednesday, August 8, 2012

My Head Weighs 20 lbs!

In mid-July we spent a week in Vegas with awesome friends.

I was already achey before we left because I have stopped the prednisone.  No major aches, just enough to remind me they are there.  Not enough that I want to go back on the prednisone yet.  We didn't do a ton while in Vegas, but just enough to aggravate my body a little more.  By the time we came home, I was done.  Spent.  Sore.

As seems to be the case lately, I came back from vacation with a cold.  Something I should be aware of and maybe try to prepare for on our next travels.  They don't last long.  just a few days.  Enough to kick my ass a little more.  Nothing like being kicked while you're already down.

It's all good though.  I survived!

I was supposed to repeat my lung function test in July since the one in May showed a 10% decrease.  I have yet to do so because I don't want remnants of the cold to affect the test.  Also, because, quite honestly, I'm not sure I want to know if it's gotten worse again.  Sometimes, ignorance IS bliss.

My shoulders and back have been bothering me more lately.  M left shoulder seems to "catch" from time to time and makes a popping noise when it releases.  Fun!  I think it's because my alignment has changed because of arms, hands, and wrists.  It's hard to explain in words, but visually, you can definitely see it.

Then, there's the 20lb head.  I can barely lift my head to turn over in bed at night.  My neck hurts and seriously feels like my head ways much more than it actually does.

So, my awesome massage therapist and friend has been seeing every other week instead of once a month lately and I've unfortunately, been using the "good meds" to sleep at night.

And, surprisingly, I still consider this as feeling "good"