Helpful Scleroderma Resources - UNDER CONSTRUCTION

Allopathic Treatment Centers

• The Johns Hopkins Scleroderma Center

NOTE:  The Johns Hopkins Rheumatology Division has additional clinics specific to Scleroderma related/overlap conditions, as well.

              

• Dr. Lesley Saketoo at Tulane University, New Orleans, LA
• Northwestern University Scleroderma Center - Chicago, IL
• Dr. Volkman at UCLA Rheumatology - Los Angeles, CA
• University Of Texas Rheumatology - Houston, TX
• Massachusetts General
  
• Vanderbilt Rheumatology - Nashville, TN

Functional Medicine Practitioners 

What is FM? - "Functional Medicine is a systems biology–based approach that focuses on identifying and addressing the root cause of disease. Each symptom or differential diagnosis may be one of many contributing to an individual’s illness."

How FM works - "both you and the Functional Medicine practitioner agree to be equal partners in meeting your health goals. Both of you will then create a healthcare plan, set expectations, and learn which lifestyle modifications will help achieve your goals."

• FM Practitioners 
• Scleroderma & Functional Medicine - PRIVATE FB group for folks utilizing or interested in utilizing FM as a modality for healing and healthcare. You must have a FB account and request to be added to the group.

Research Centers

• The Scleroderma Research Foundation
• Boston University Scleroderma Research Center
• Boston University Rheumatology National Scleroderma Core Centers
• University of Pittsburgh Systemic Sclerosis Center of Research Translation
• Whitfield Lab at Dartmouth

Patient Education, Connection, Community Resources

• The Scleroderma Foundation
• Chapters
• Support Groups
• More Than Scleroderma
• Project Scleroderma
• SPIN - Scleroderma Patient-centered Intervention Network